Hi everyone, there is just too much to write since its been so long...
But I can't go to bed without sharing something amazing...yes its personal in nature, and maybe TMI
but it moved me to tears several times tonight as I reflected on this..
Levi has used a intermittent catheter 4 times a day since he was 6 weeks old...we know that he can pee on his own, but his bladder muscles are not strong enough to contract to get all of it out..this causes a risk of reflux into his kidneys...so this is a big thing in the world of dealing with spina bifida..nerve damage doesnt just stop at the legs but is also internally from the lesion point down. Bowels are also affected and many can be at risk for bowel obstruction with not being able to contract the muscles to allow the stool to pass...again sorry for all of this tmi...
We have already been blown away that since 15 months Levi has gone #2 on the potty, and rarely in his diaper. He now tells me when he needs to go, and although its not "easy", its pretty amazing that he can 1. tell me, 2. hold it in, 3. make it happen.
I have praised God over that so many times, and been in wonder that he can even do that...
Recently I have been noticing that he's been telling me every now and then when he has to go pee though, which is pretty shocking....so I usually do a catheter whenever he tells me, and then he tells me he feels better...but recently its been often....amazing....even waking ne up ib the am bc he has to go potty!! so last night he was sitting on the potty, and he figured out how to make it come out...it was hilarious to him, he thought it was pretty amusing....when I cathed him I only got a little bit out...much less than usual...tonight he wanted to try to go potty again and this time I couldnt get anything out. ANYTHING! I tried 3 caths thinking surely I was doing something wrong but I wasnt! This is wear my tears couldnt stop....I dont know if this is permanent or whats next for him, but I do know that I have had lots of time praying specifically over his body recently asking God for specific things. I have been already rejoicing over so many milestones that have been unexpected, but this one is a pretty big one. Even in the slightest bit of feeling recently, this is a tremendous thing in our world. Don't stop praying for his little body. Thankful for continued blessings and the privilege it has been to see each miracle in his life.
I hope to share more soon...I can't imagine life any busier at the moment, but we are enjoying every minute!
