Life Adventures and Day Dreams: March 2013

Thank you all so much for all the prayers, and sweet words of encouragement! I am so amazed at how all of this worked out. It was really frustrating getting to this point and having to wait so long, but I know they couldnt make a clear decision for surgery until probably this point.
So I am thankful for signs like throwing up, which was so awful, but one of the only indicators we needed to press on with the revision!

I am SO amazed at this little guy, and the resilience he displays! He is doing fantastic, and almost back to himself! Just a little more sleepy, and wears out a little bit more, but I can tell he is feeling so so much better!! He is back to talking a mile a minute with full sentence which I was missing because he was feeling so horrible for the last few weeks and was just quieter... he is playing and wants to get EVERY TOY out hahah. and wants to walk everywhere even outside and walking better than he was for the last month =) I am just SO thankful that we had this surgery. He really feels better and I am so thankful for Dr. Boaz for knowing that just that little thing being off could effect him!
I am still mostly keeping him home because of just the fresh wounds, he has a spot on his belly and a spot on his head, so we just are trying to keep them super clean. But he is healing so fast. He actually has stopped playing a couple of times to say "mom! I feel better!!" it just makes me wonder if the pain he was having was worse than this surgical pain.....

I have felt so much better this week too, knowing that I dont have to be so concerned about what in the world is happening to him! I feel like a huge burden lifted as we now are on the upswing of things. I had some friends offer to help me this week which has been just great because there were a lot of things I had to put aside as we were dealing with all of this.

I loved that he wanted to go outside, it was the first time he has asked to do that, and I love that he realizes he really can go anywhere he wants to!
We are hoping his new walker will be here in the next few weeks here and that will give him a lot more freedom! I was thinking today as it is spring, I need to make sure I am taking him outside to come get the mail and show him things outside more because if he was walking on his own I know he would have ran out the door with me to come check everything out, so my thought today is its time to be outside and explore nature!! I am always having to remember that if he was walking he would also be doing XYZ and I need to help him do those things still.

We also go approved for a scoliosis brace for him to wear...this is not like a wooohoo! but its a really good thing because we know he needs it just by looking at him, and his orthotist just called and got us a script instead of having to wait until august to have another x ray. I am glad to get this taken care of sooner than later! This one sounds like it will be a lot easier for him to wear, especially going in to summer, its going to be softer kind of like spanx =) and more movable than his hard shell kind of brace he had and will be more breathable. Yay.

I hope we dont have anymore speed bumps this year, he has a lot of exciting things a head of him and we hope he just keeps progressing from here. I guess I am encouraged that the shunt was working but not placed right vs. an actual shunt failure... That would have been such a different circumstance I feel like!

Thanks again for all your support for our family! We were blown away by all of your sweet words of encouragement!!

Also, hope this works out to move over to this site, I know its annoying, but I feel like its so much more user friendly than caringbridge. Let me know if you have trouble though, my email is Bethanybracht@gmail.com